Cardiomyopathy UK
About Cardiomyopathy UK Cardiomyopathy UK is the only charity in the UK dedicated to supporting people affected by cardiomyopathy, a condition that affects the heart muscle. We provide expert information, emotional and practical support, and campaign for better diagnosis, treatment, and care. We are a growing national charity with ambitious plans to reach more people, improve services, and strengthen our financial sustainability. This is an exciting opportunity to play a key role in expanding and diversifying our income while building meaningful partnerships that help us make a lasting difference for individuals and families across the UK. The Role We are seeking a proactive and supportive Fundraising Development Manager to lead and grow our income generation activities. Alongside overseeing day to day fundraising, this role will shape our long term development strategy, strengthen supporter journeys, and build sustainable income pipelines across community fundraising, events, legacies, major donors, and trust fundraising. This is a senior management role where you will guide a small, passionate fundraising team. Our fundraisers are energetic, professional, and committed to helping more people affected by cardiomyopathy. We need an outstanding manager who can inspire and empower them to achieve their goals. Main Responsibilities Fundraising Leadership and Team Management: Lead and motivate a team of three members of staff ensuring clear objectives, accountability, and professional development. Develop and implement an annual fundraising plan and income targets across key income streams. Promote a collaborative, creative, and results focused team culture. Contribute to organisational strategy and income forecasting Trusts, Foundations and Grants Research and identify new funding opportunities across trusts, foundations, and grant makers. Write compelling and tailored funding proposals that align with the charity s strategic priorities and projects. Manage relationships with funders, providing high quality reports, updates, and stewardship. Secure funding for both core operational costs and specific charity projects. Lead the development of long term income growth plans, ensuring the charity has a balanced and sustainable fundraising portfolio. Strengthen supporter pipelines across all income streams, from first engagement to long term stewardship. Identify new areas for income development, testing and scaling approaches that have strong potential. Community and Events Fundraising: Oversee the delivery of a range of community and challenge fundraising events, including flagship charity events and third party challenges. Support the team to plan and deliver special fundraising events, such as donor receptions and corporate challenges (abseils, treks, marathons, etc). Ensure high quality supporter experiences to maximise income and retention. Develop creative campaigns to engage new supporters and volunteers across the UK. Individual Giving and Supporter Development: Support the team to grow regular giving and one off donations through creative campaigns and appeals. Oversee stewardship processes to ensure all supporters receive timely, engaging, and personal communication. Use insights and data to understand supporter motivations and improve donor journeys. Develop a clear supporter development strategy that nurtures long term giving and encourages upgrades, reactivation, and retention. Introduce new development led approaches such as supporter segmentation, insight driven journeys, and testing plans. Major Donors and High Value Giving: Build and maintain relationships with philanthropists and high net worth individuals. Develop a programme to secure transformational gifts and long term strategic support. Monitoring, Reporting and Compliance: Manage budgets and income forecasts across all fundraising streams. Report regularly to the Executive Leadership Team on income, progress, and new opportunities. Ensure all fundraising activity complies with relevant regulations, codes of practice, and GDPR requirements. Maintain accurate and up to date records using the charity s CRM and fundraising platforms. Essential Experience and Skills: Significant experience in fundraising, with a proven track record of success across multiple income streams (particularly trusts, corporates, or major donors). Demonstrated success in achieving income growth and diversifying fundraising portfolios. Proven experience leading and motivating fundraising teams. Excellent relationship building and communication skills, with confidence engaging a wide range of stakeholders. Strong written skills, including experience developing successful bids, cases for support, and partnership proposals. Sound financial and strategic planning skills, including budget management, forecasting, and reporting. Excellent organisational and time management skills, with the ability to prioritise competing demands. Confident, proactive, and able to work independently while contributing to team goals. A collaborative and positive leadership style that motivates and empowers others.
About Cardiomyopathy UK Cardiomyopathy UK is the only charity in the UK dedicated to supporting people affected by cardiomyopathy, a condition that affects the heart muscle. We provide expert information, emotional and practical support, and campaign for better diagnosis, treatment, and care. We are a growing national charity with ambitious plans to reach more people, improve services, and strengthen our financial sustainability. This is an exciting opportunity to play a key role in expanding and diversifying our income while building meaningful partnerships that help us make a lasting difference for individuals and families across the UK. The Role We are seeking a proactive and supportive Fundraising Development Manager to lead and grow our income generation activities. Alongside overseeing day to day fundraising, this role will shape our long term development strategy, strengthen supporter journeys, and build sustainable income pipelines across community fundraising, events, legacies, major donors, and trust fundraising. This is a senior management role where you will guide a small, passionate fundraising team. Our fundraisers are energetic, professional, and committed to helping more people affected by cardiomyopathy. We need an outstanding manager who can inspire and empower them to achieve their goals. Main Responsibilities Fundraising Leadership and Team Management: Lead and motivate a team of three members of staff ensuring clear objectives, accountability, and professional development. Develop and implement an annual fundraising plan and income targets across key income streams. Promote a collaborative, creative, and results focused team culture. Contribute to organisational strategy and income forecasting Trusts, Foundations and Grants Research and identify new funding opportunities across trusts, foundations, and grant makers. Write compelling and tailored funding proposals that align with the charity s strategic priorities and projects. Manage relationships with funders, providing high quality reports, updates, and stewardship. Secure funding for both core operational costs and specific charity projects. Lead the development of long term income growth plans, ensuring the charity has a balanced and sustainable fundraising portfolio. Strengthen supporter pipelines across all income streams, from first engagement to long term stewardship. Identify new areas for income development, testing and scaling approaches that have strong potential. Community and Events Fundraising: Oversee the delivery of a range of community and challenge fundraising events, including flagship charity events and third party challenges. Support the team to plan and deliver special fundraising events, such as donor receptions and corporate challenges (abseils, treks, marathons, etc). Ensure high quality supporter experiences to maximise income and retention. Develop creative campaigns to engage new supporters and volunteers across the UK. Individual Giving and Supporter Development: Support the team to grow regular giving and one off donations through creative campaigns and appeals. Oversee stewardship processes to ensure all supporters receive timely, engaging, and personal communication. Use insights and data to understand supporter motivations and improve donor journeys. Develop a clear supporter development strategy that nurtures long term giving and encourages upgrades, reactivation, and retention. Introduce new development led approaches such as supporter segmentation, insight driven journeys, and testing plans. Major Donors and High Value Giving: Build and maintain relationships with philanthropists and high net worth individuals. Develop a programme to secure transformational gifts and long term strategic support. Monitoring, Reporting and Compliance: Manage budgets and income forecasts across all fundraising streams. Report regularly to the Executive Leadership Team on income, progress, and new opportunities. Ensure all fundraising activity complies with relevant regulations, codes of practice, and GDPR requirements. Maintain accurate and up to date records using the charity s CRM and fundraising platforms. Essential Experience and Skills: Significant experience in fundraising, with a proven track record of success across multiple income streams (particularly trusts, corporates, or major donors). Demonstrated success in achieving income growth and diversifying fundraising portfolios. Proven experience leading and motivating fundraising teams. Excellent relationship building and communication skills, with confidence engaging a wide range of stakeholders. Strong written skills, including experience developing successful bids, cases for support, and partnership proposals. Sound financial and strategic planning skills, including budget management, forecasting, and reporting. Excellent organisational and time management skills, with the ability to prioritise competing demands. Confident, proactive, and able to work independently while contributing to team goals. A collaborative and positive leadership style that motivates and empowers others.
Cardiomyopathy UK
About Cardiomyopathy UK Cardiomyopathy UK is the only UK charity dedicated to supporting people affected by all forms of cardiomyopathy and myocarditis. We provide expert advice, trusted information, and support to individuals and families, while championing earlier diagnosis, better treatment and improved care. This is an exciting time to join a growing organisation with a strong, patient-centred mission and an ambitious programme of work across research, policy, services and awareness. Role Purpose The Communications & Marketing Manager will lead our communications, brand and digital presence, ensuring Cardiomyopathy UK reaches and engages the people who need us most. You will shape and deliver high-quality, impactful communications across all channels, strengthening our voice, raising awareness of cardiomyopathy, and supporting the growth of our services, fundraising and partnerships. This is a hands-on role for a skilled communicator who can balance strategic thinking with delivery. You will work in a highly matrixed team, supporting colleagues across services, fundraising, events, research, and public affairs. You will collaborate closely with the Executive Leadership Team, clinical experts, fundraisers and our community to tell powerful stories and drive meaningful engagement. Key Responsibilities Communications & Brand Lead the development and delivery of Cardiomyopathy UK s communications and marketing strategy. Manage and maintain the charity s brand identity, ensuring consistency across all channels, publications and partnerships. Produce high-quality written content including blogs, newsletters, web copy, reports, press releases, campaign assets and patient stories. Support internal colleagues across departments with communications planning, copywriting and brand guidance. Digital Marketing (Website & Social Media) Oversee content, structure and performance of the Cardiomyopathy UK website, working with external developers where required. Manage social media channels (Twitter/X, LinkedIn, Facebook, Instagram, YouTube), including planning, creating and scheduling high-quality content. Monitor digital analytics and provide insights and recommendations to improve reach, engagement and conversion. Lead email marketing activity, including newsletters, segmentation and performance monitoring. Campaigns & Awareness Plan and deliver integrated awareness and marketing campaigns aligned to strategic priorities including early diagnosis, patient support services, fundraising and major events. Coordinate campaign content creation, timelines and measurement, ensuring campaigns are impactful and audience driven. Work with partners, funders and patient contributors to develop compelling stories and campaign assets. Media & Public Relations Act as the first point of contact for media enquiries and support the CEO and spokespeople with interview preparation. Build relationships with journalists, sector press and broadcast media to raise awareness of cardiomyopathy and the charity s work. Draft press releases, media lines and Q&A briefs for key announcements and campaigns. Cross-Organisational & Matrixed Working Work closely with the event manager to promote flagship events, patient webinars and professional engagement activities. Partner with public affairs colleagues to amplify policy, research and advocacy messages and ensure alignment across channels. Support the fundraising team with donor communications, appeals, supporter journeys and marketing collateral. Work closely with clinical colleagues to deliver compelling, on-brand, educational and information materials for various audiences. Ensure coordinated planning across teams so that communications reflect organisational priorities and opportunities. Community & Stakeholder Engagement Collaborate with clinicians, researchers, patient advocates and charity partners to strengthen our communications and visibility. Amplify the voices and experiences of people living with cardiomyopathy through inclusive, ethical storytelling. Person Specification Essential Proven experience in communications, marketing or digital roles ideally within a charity, health or public sector context. Strong copywriting and content creation skills, with the ability to explain complex information clearly and sensitively. Experience managing websites, digital content and social media channels. Ability to plan and deliver multi-channel campaigns. Confident in managing media enquiries and developing press materials. Experience working collaboratively in a matrixed or cross-functional team, supporting multiple stakeholders simultaneously. Excellent organisational and project-management skills with the ability to prioritise a varied workload. Strong analytical skills with experience using digital analytics tools. A collaborative team player with a commitment to empowering patients and improving health outcomes. Personal Qualities A natural people person, approachable, supportive, and empathetic. Solution focused and resourceful, able to stay calm and find ways forward in challenging situations. A strong sense of initiative and ownership, with a hands-on, can-do approach. An inspiring communicator who builds trust and enthusiasm across teams and partners. Adaptable and open to change, always looking for opportunities to improve. Demonstrates Cardiomyopathy UK s values and integrity in all aspects of work. A genuine team player who contributes to a positive and inclusive working culture.
About Cardiomyopathy UK Cardiomyopathy UK is the only UK charity dedicated to supporting people affected by all forms of cardiomyopathy and myocarditis. We provide expert advice, trusted information, and support to individuals and families, while championing earlier diagnosis, better treatment and improved care. This is an exciting time to join a growing organisation with a strong, patient-centred mission and an ambitious programme of work across research, policy, services and awareness. Role Purpose The Communications & Marketing Manager will lead our communications, brand and digital presence, ensuring Cardiomyopathy UK reaches and engages the people who need us most. You will shape and deliver high-quality, impactful communications across all channels, strengthening our voice, raising awareness of cardiomyopathy, and supporting the growth of our services, fundraising and partnerships. This is a hands-on role for a skilled communicator who can balance strategic thinking with delivery. You will work in a highly matrixed team, supporting colleagues across services, fundraising, events, research, and public affairs. You will collaborate closely with the Executive Leadership Team, clinical experts, fundraisers and our community to tell powerful stories and drive meaningful engagement. Key Responsibilities Communications & Brand Lead the development and delivery of Cardiomyopathy UK s communications and marketing strategy. Manage and maintain the charity s brand identity, ensuring consistency across all channels, publications and partnerships. Produce high-quality written content including blogs, newsletters, web copy, reports, press releases, campaign assets and patient stories. Support internal colleagues across departments with communications planning, copywriting and brand guidance. Digital Marketing (Website & Social Media) Oversee content, structure and performance of the Cardiomyopathy UK website, working with external developers where required. Manage social media channels (Twitter/X, LinkedIn, Facebook, Instagram, YouTube), including planning, creating and scheduling high-quality content. Monitor digital analytics and provide insights and recommendations to improve reach, engagement and conversion. Lead email marketing activity, including newsletters, segmentation and performance monitoring. Campaigns & Awareness Plan and deliver integrated awareness and marketing campaigns aligned to strategic priorities including early diagnosis, patient support services, fundraising and major events. Coordinate campaign content creation, timelines and measurement, ensuring campaigns are impactful and audience driven. Work with partners, funders and patient contributors to develop compelling stories and campaign assets. Media & Public Relations Act as the first point of contact for media enquiries and support the CEO and spokespeople with interview preparation. Build relationships with journalists, sector press and broadcast media to raise awareness of cardiomyopathy and the charity s work. Draft press releases, media lines and Q&A briefs for key announcements and campaigns. Cross-Organisational & Matrixed Working Work closely with the event manager to promote flagship events, patient webinars and professional engagement activities. Partner with public affairs colleagues to amplify policy, research and advocacy messages and ensure alignment across channels. Support the fundraising team with donor communications, appeals, supporter journeys and marketing collateral. Work closely with clinical colleagues to deliver compelling, on-brand, educational and information materials for various audiences. Ensure coordinated planning across teams so that communications reflect organisational priorities and opportunities. Community & Stakeholder Engagement Collaborate with clinicians, researchers, patient advocates and charity partners to strengthen our communications and visibility. Amplify the voices and experiences of people living with cardiomyopathy through inclusive, ethical storytelling. Person Specification Essential Proven experience in communications, marketing or digital roles ideally within a charity, health or public sector context. Strong copywriting and content creation skills, with the ability to explain complex information clearly and sensitively. Experience managing websites, digital content and social media channels. Ability to plan and deliver multi-channel campaigns. Confident in managing media enquiries and developing press materials. Experience working collaboratively in a matrixed or cross-functional team, supporting multiple stakeholders simultaneously. Excellent organisational and project-management skills with the ability to prioritise a varied workload. Strong analytical skills with experience using digital analytics tools. A collaborative team player with a commitment to empowering patients and improving health outcomes. Personal Qualities A natural people person, approachable, supportive, and empathetic. Solution focused and resourceful, able to stay calm and find ways forward in challenging situations. A strong sense of initiative and ownership, with a hands-on, can-do approach. An inspiring communicator who builds trust and enthusiasm across teams and partners. Adaptable and open to change, always looking for opportunities to improve. Demonstrates Cardiomyopathy UK s values and integrity in all aspects of work. A genuine team player who contributes to a positive and inclusive working culture.
