Job Description
About us
Join our team at the MPS Society, one of the leading rare genetic disease charities in the UK aiming to transform the lives of over 1500 individuals and their families UK-wide who are affected by MPS, Fabry and other related lysosomal diseases.
We are expanding our small, dedicated, Support team who raise awareness, provide information and practical guidance alongside support and advocacy relating to health and social care, housing, education, transition, independent living, palliative care, and bereavement. This team also contribute to the development of our resources and facilitate project work such as youth engagement, advisory boards, and support groups.
Ideal candidate
As a Support & Advice Officer, you will provide administrative and initial frontline support. You will have the confidence to respond to queries, triaging when required. You will work with sensitivity and confidentiality, have excellent communication skills making sure that the individual (or family) remains at the centre of your work. You will have exceptional IT skills and be highly organised, with the ability to juggle many strands of work. You will demonstrate a positive attitude and a willingness to work collaboratively with your colleagues and external parties.
Training on MPS and related conditions will be provided to help you develop a good understanding of MPS and related conditions, and the needs of those affected by these progressive, life-limiting conditions.
What we can offer you
Join us and you will be working for a caring charity offering:
- A competitive salary
- Generous annual leave of 25 days plus bank holidays (pro-rata for part time hours)
- Extra leave between Christmas and the New Year
- Pension
- Life assurance (subject to the conditions of the scheme)
- Employee assistance programme offering support 24/7
Further information
The successful candidate must be eligible to work in the UK.
The main duties, responsibilities and essential requirements of this role can be viewed on the attached job description.
This is an essential car user post. The applicant must hold a current UK driver s licence, with no more than 6 points, have access to a car and be able and willing to drive UK wide as required.
This role is offered on a hybrid basis with a minimum of 2 days in our Amersham office each week. As part of the role, UK wide travel is necessary. which may on occasion include early morning and/or evening working and sometimes overnight stays. You may also occasionally be required to attend evening or weekend conferences and events. We have policies in place to ensure that any unsociable hours worked are fairly compensated.
This is a full-time role (35 hrs per week) however part time hours may be considered for the right candidate. Salary will be pro-rata for part-time.
We encourage candidates to visit the MPS Society website to learn more about us and the community we serve. Alternatively, if you would like an informal chat about the role or the work of the MPS Society, please contact Bethanie Pentecost.
Disclosure & Barring Service (DBS)
The MPS Society is a charity that provides a range of care, support and activities for children and adults at risk throughout the UK. This is provided in several ways through our dedicated support and advocacy service, annual events, patient expert meetings and conferences. MPS staff, trustees and volunteers may be asked to be involved in the delivery of its regulated activities and therefore will require an enhanced DBS check during recruitment and for this to be reviewed on a regular basis.
To apply: Please provide your CV and a cover statement giving examples to demonstrate your competencies, achievements and skills alongside explaining how your previous roles and experiences make you the candidate we are looking for.
Closing Date: Whilst we have an initial closing date of 17 November 2025. We reserve the right to close this vacancy early if we receive enough suitable applications to take forward to interview and assessment.
