Social Media Manager

We are currently seeking a freelance Social Media Manager who thrives on working on initiative, in an exciting and engaging environment. The post holder will manage our active channels: Facebook, Instagram and LinkedIn. With input from our small cross-functional team, we are seeking someone to draft text and create content (including video and reels) for our audiences, which are made up of families living with Dravet Syndrome, health and care professionals and researchers. We use Canva for design.

You ll post and schedule (using Hootsuite) dynamic, engaging and creative content, helping to amplify the voices and stories of our community. This includes sharing a range of updates, from family events to scientific developments; promoting the services that Dravet Syndrome UK provides to its beneficiaries; and supporting fundraising activities.

You will contribute to reporting, use findings to impact future content, keep up with social media trends and identify improvements to reach new audiences. At the moment, our content is mostly organic, but from time to time, there may be a budget to get involved in paid-for campaigns.

This role offers the opportunity to use your skills to amplify stories that genuinely matter: from sharing the latest research to helping a family feel less alone. In a small team (8 people), your contribution is visible and valued. Our dedicated team is deeply connected to our core audience, and their motivation stems from witnessing our profound impact on people's lives. Working alongside inspiring families, you'll see first-hand the incredible love and dedication they have.

We offer flexible, remote working and a supportive environment. Join us today and contribute to making a lasting difference in the lives of those we support.

We are seeking applicants with the following essential and desirable skills:

Essential

Demonstrable experience in implementing digital communications activities, including experience across a range of social media platforms

Demonstrable experience of working in charity, patient advocacy or healthcare sectors

Ability to deal with people at all levels with empathy, tact and credibility

Excellent written and verbal communication skills, with an ability to distil large amounts of information and present it in engaging and innovative ways for a variety of audiences

Demonstrable design skills and knowledge of desktop publishing software e.g. using Canva to create in-house designs for social media

Good understanding of brand, visual identity and corporate communication

Strong organisational and project management skills, with the ability to prioritise

Be a self-starter and team player with experience of remote working, and able to work effectively with colleagues using remote technology (e.g. Zoom, Google meets, etc)

Desirable

Experience using Hootsuite or similar scheduling and social media management platforms

Video and reels creation skills, including basic editing

Experience of paid social media campaigns (Meta, LinkedIn)

Familiarity with analytics tools and translating data into actionable insights

Basic knowledge of SEO and how social content supports wider digital presence

Experience working with or for small charities or membership organisations

About Dravet Syndrome

Dravet Syndrome UK (DSUK) is a small independent UK charity dedicated to improving the lives of those affected by Dravet Syndrome. Dravet Syndrome is a rare neurological condition that affects around one in every 15,000 people in the UK. As well as experiencing severe, difficult-to-control seizures, children and adults with Dravet Syndrome have varying degrees of intellectual disability and a spectrum of associated conditions (known as comorbidities ), which may include autism, ADHD, behaviours that challenge and difficulties with speech, mobility, eating and sleep.

About Dravet Syndrome UK

The charity was founded in 2009 by a small group of 30 families. Today, DSUK is a registered charity helping approximately 600 families with support, education, and research programmes, underpinned by a world-class Medical Advisory Board.

How to apply

Please submit your CV and a covering letter indicating why you are interested in applying for this role and how you meet the selection criteria.

We want you to have every opportunity to demonstrate your skills, ability and potential; please contact us if you require any assistance or adjustment so that we can help make the application process work for you

The closing date for applications is Tuesday, 9th June 2026. Shortlisted candidates will be invited to take part in an online (virtual) interview later in June.

Our commitment to diversity

As part of our ambitions to improve equality and diversity, we welcome applications for this role from those who identify under any of the protected characteristics under the Equality Act 2010, which include race, age, disability, gender, religion or belief, and sexual orientation.